As Healthy As I Will Ever Be

As Healthy As I Will Ever Be Posted by jrobinjrob on December 14, 2013 I am as young as I will ever be… Actually As Healthy As I Will Ever Be.I have a chronic illness that will never go away, EVER! I have MS, I have Crohn’s, I have Fibro, I have Diabetes, I have a Cancer, I have Lupus, I have Chronic Pain and I have many, many more. (Speaking for friends too) These things I talk about, all the time, HOW CAN I Not??? I SOOO Wish I Didn’t Have To!!! (Awareness)!But do they make me??? I don’t think so!!! (I have a chronic illness, but it does not have me!!!)So what if I have a chronic condition, I may faultier sometimes and ask for some help as well, this makes me human!See I am not the super human I portray myself to be.But I Am, I Am What I Choose and not what this disease says I am. I will not let chronic illness beat me or define me…I am way tougher than me!!! Join me in the fight, spread the word about whatever illness you or someone know has received… I am Josh Robinson, Son, Brother, Husband, Daddy, Friend and Coach!!!  I hope to inspire a few, just a few, because all we can do is inspire,,, just a few!!! A musician friend inspired this, he knows who he is, and no I do not have all of these diseases… This is a repost, re-blog whatever you want to call it

via As Healthy As I Will Ever Be.


Sharon Saeed’s Strength in Numbers

this is a video made by my friend Sharon Saeed. she is paying homage to those whom lost their battle to ibd, and calling us with inflammatory bowel disease to action to put the medical community on notice because we are many, we deserve a cure and that there is strength in numbers.

Joshua E. Robinson


In Your Darkest Moment Always Remember There is Still Hope!!! 🙂

This is a new blog post by my friend Megan Starshak of the

This is a new blog post by my friend Megan Starshak of the

Making It Work with Crohns or Colitis

by The Great Bowel Movement on July 9, 2012 in Coping With IBD, Owning your Disease

Just another day at the office.

Many of us are diagnosed at a young age. Our parents to take care of us, to drive us to the doctor, to write a letter to our teacher, and to make us our favorite tummy-friendly meal. We go to school and although it’s hard and the other kids don’t always sympathize, we know our teacher will understand if we have to take a long bathroom break. We go to college and find that we don’t have to raise our hand to go to the bathroom. We miss class when we need to, make up the work when we can, and spend the day between the toilet and the couch. We graduate and everyone is proud of what we have accomplished in spite of our conditions.

And then we get a job.

It’s challenging enough, in our current market, to find a good job, or even land an interview. Gone are the days of growing our identities through our IBD experiences, and asking for exceptions whenever they are necessary. Last time I checked, no one was getting paid just for beating a disease. The job-searching, and job holding processes can be very stressful and complicated without a disease, but with something like Crohn’s or Colitis, the obstacles can be multiplied.

Just graduated? Tips for your first job search with IBD.

When going through the interview process, be aware that there are laws to protect you, including discriminatory protection based on disease. It is also illegal for a potential employee to ask you if you have a disease such as IBD during this process. However, it’s generally a good practice to avoid the topic of illness during this stage. Sometimes, potential employees won’t hire you because of potential future complications and threat of discrimination. Jennifer Jaff, of Advocacy for Patients with Chronic Illness, discusses your rights in detail:

In the workplace though, it can sometimes be unavoidable to disclose your condition with your coworkers or superiors. Perhaps you have to request a private bathroom, or explain why you keep extra pants in your bottom drawer, or avoid most of the food at the company picnic. At my first office job, I had to explain why I might be running late (my colon had a non-negotiable appointment with the toilet, every morning at 7:40 sharp, and for approximately 15 minutes) and pray that my boss would believe me. I also snuck a book of crosswords into the office bathroom for those extended bowel movements during the day. On the other hand, I have been asked in interviews about my biggest accomplishment, and I couldn’t help but tell my story of learning to live with Colitis and completing the Get Your Guts In Gear bike ride for the first time.

First of all, here are some tips for dealing with IBD at work:
1. Map out all the bathrooms in your building. Figure out which ones are cleanest, least busy, and never run out of toilet paper!
2. Show your colleagues and superiors that you are motivated and capable before you let them know about your condition. When you bring it up for the first time, accentuate the positive, like overcoming challenges and being inspired. Make them love you before you discuss your disease, and make them love you more for your strength!
3. Keep some trade journals in your bathroom. This way, you won’t feel guilty about spending too much time in there, especially when its unavoidable. Also, if anyone else sees your magazine stash, they’ll see you are serious about your job despite your frequent bathroom trips!
4. Learn that Crohn’s or Colitis is not an excuse, and live by that. Your co-workers will quickly catch on that you are serious about your coping skills. Also, you one day may need to use it as an actual reason for something- and having people accept this, even when they likely will not understand- and your integrity will be your biggest ally.
5. Keep clean underwear, and maybe even pants, in your desk drawer for emergencies. Pick some out that make you happy- maybe they are cute, fun, or extra comfortable. This way, when you need to call on them for backup, it will be something you’re excited to change into when you feel pretty gross!

All of us have likely developed our own set of coping skills. (Please leave your personal tips in the comments!) A lot of these skills have developed from our experiences of living a chronic illness driven life in the real world. Too familiar are reactions of people who just don’t understand, or don’t even care to hear, about Crohn’s and Colitis.

The professional environment is no exception to misunderstandings. When you do decide to discuss your illness at work, you may be met with unfavorable reactions, and the instant opinion that IBD will inhibit your work ability. But as people seasoned in dealing with IBD, we know that although it is a tough journey, it can make us better people! Here are some specific workplace reasons why IBD can actually benefit your workplace value! Feel free to discuss these with your co-workers, or just become a living example.

1. People with Crohn’s and Colitis know what it really means to be sick, and they understand that they may need to save sick days for when they are desperately needed. The also generally monitor their overall health more closely than the average worker. Because of this, IBD patients may actually have better attendance records, and not call in for minor reasons like a headache or a sniffle.

2. IBD patients have dealt with pain and discomfort on a larger scale than most. Have you noticed that after your experience, or a tough flare, that getting back to normal seems like the greatest thing ever? The tiny bumps in the road become insignificant, and are easily handled. IBD teaches you “ don’t sweat the small stuff”.

3. A moderate or severe flare may render IBD patients in the hospital for a few days or longer, or even just mandate staying at home, in bed, and close to a toilet. This experience is extremely motivating to make the most out of our lives, talents, and energies, for when we are feeling better.

4. A good dose of Crohn’s or Colitis can be a major motive in restructuring priorities. Building trustworthy relationships, job loyalty, and career success can be satisfying results of a job well done, not to mention steady health insurance. Also, the experience of IBD can lead us to desire more meaning and purpose in our lives. This also fuels our desire to accomplish something in our jobs, aside from merely climbing the corporate ladder and chasing a bigger paycheck.

5. Crohn’s and Colitis are full of challenging situations. Sometimes, these can be minor, and sometimes larger. Sometimes there is no choice but to deal, and sometimes they are life-changing decisions, like whether or not to have surgery. Learning to deal with these can teach us how to face challenges like a pro, even when others may back down.

While work is just one aspect of our lives, we do spend a lot of time there. A steady income and source of health insurance are nearly always necessary. Yet we will always have challenges to overcome in this environment, and rising to the challenge, becoming a positive example of someone living with IBD, and spreading awareness will collectively help all of us reduce these challenges.

In Your Darkest Moment Always Remember There is Still Hope!!! 🙂

Buy #GetYourBellyOut

Buy #GetYourBellyOut merchandise!

They are FINALLY here and we are SO excited!!

We are selling #GetYourBellyOut wristbands AND #GetYourBellyOut car stickers.

ALL profits will be donated toCrohn’s and Colitis UK

Firstly you will need to figure out the cost of your item PLUS postage and packaging.

P&P charges will be dependent on your location.


Cost per wrist band £1.50

Cost per car sticker £2.00


UK P&P £1.25


Europe P&P £3.20


World Zone 1 P&P £3.80


World Zone 2 P&P £4.00

Please see the chart below to find your location:

Payment instructions :

Go to

Log-in to your Paypal account and you will will find yourself here

Click ‘Send Money’, as pictured above, circled in red at the top of the page.

This will then take you to this page:

To (Email address or mobile number)


ENTER the total of your merchandise PLUS postage and packaging costs. Any extra donation you wish to make should also be added on here.

And check the ‘I’m paying for goods or services’ option (Paypal fee’s will be paid by us)

Then click ‘Continue’

NEXT, review your payment and SCROLL DOWN TO THE BOTTOM OF THE SCREEN TO CHOOSE YOUR DELIVERY ADDRESS. (This is the address that your merchandise will be dispatched to unless stated otherwise)

FILL IN THE ‘Email to recipient’ SECTION WITH THE DETAILS OF YOUR ORDER. (See image below)

Please include:

· The quantity of stickers and wristbands you are ordering and the cost

· The total postage and packaging cost

· Any extra donation amount (This will go straight to Crohn’s and Colitis UK)

AND….you’re done 🙂

If for any reason you cannot order via PayPal then please email discuss alternate payment methods.


The #GetYourBellyOut team would like to thank you
for supporting us and helping raise money for Crohn’s and Colitis UK!
PLEASE upload your merchandise photos to Twitter & Instagram using the #GetYourBellyOut hashtag
or upload them to our Facebook page.

Credit to Sahara Fleetwood-beresford for composing this blog post & helping with such an wonderful explanatory step by step guide to purchasing your #GetYourBellyOut merchandise!! Xx

Joshua E. Robinson


In Your Darkest Moment Always Remember There is Still Hope!!! 🙂


Repost from my friend Victoria Marie from across the pond.

Victoria Marie

Crohn’s And UC Support One Another

After months of planning its **TIME FOR THE #GetYourBellyOut CHARITY CALENDAR COMPETITION!!**
Raising awareness for Crohn’s Disease and Ulcerative Colitis!
For all of the rules and information on how YOU can take part…click here>
Does anyone fancy the challenge? Xx

**Please note** EMAIL ALL PHOTOS TO sahara


Thank yoooo Xx

In Your Darkest Moment Always Remember There is Still Hope!!! 🙂

Fatigue and Chronic Illness

What is Fatigue and why do I want to talk about it? Simple response, it affects me and most of my “Chronic Babies”! Well okay all of them!!! But everybody gets tired, right, well yes, but we the IBDer’s, the Lupes, the MSer’s, etc, wake up in the morning already exhausted. Why? Well you know when you get the flu or a cold how tired you are, that is because your immune system went into overdrive to fight off whatever has sickened you, you already know this. Because your body’s immune fights, wins then goes back to normal, right? Right. For whatever reason and this is a big unknown, the immune system of a chronically ill person decides it’s owner is the enemy, and you begin fighting yourself, double jeopardy, you are trying to kill you. Your white cells are attacking your red cells, red cells, white cells, white cells killing good bacteria. UGH,,, I’m Tired!!! I have wiped myself out!!!

Joshua E. Robinson


In Your Darkest Moment Always Remember There is Still Hope!!! 🙂

I lie almost everyday

This is very good and pretty much applies to all with a chronic illness.

gut-wrenching truth about crohns


Today tested my character and broke me down. I am tired of lying. I lie so I must be a terrible person right? Maybe.  Let me explain and you can judge me later.

You: How was your weekend?

Me: It was good. I just lied to you. I sugar-coated my weekend because honestly you don’t want to hear the truth. You don’t want to hear that while it was wonderfully beautiful outside I spent most of the time curled up in a ball fighting the pain in the pit of my stomach and nausea that creeps up whenever it feels like it. (I have Crohn’s disease and that sometimes is my typical weekend.) I also sucked that up for a few hours to work my second job to pay my mounds of accumulating medical bills.

See, you didn’t want to hear the truth. I don’t know why people…

View original post 373 more words