Repost from my friend Victoria Marie from across the pond.

Victoria Marie‎

Crohn’s And UC Support One Another

After months of planning its **TIME FOR THE #GetYourBellyOut CHARITY CALENDAR COMPETITION!!**
Raising awareness for Crohn’s Disease and Ulcerative Colitis!
For all of the rules and information on how YOU can take part…click here>

Does anyone fancy the challenge? Xx

**Please note** EMAIL ALL PHOTOS TO sahara


Thank yoooo Xx

In Your Darkest Moment Always Remember There is Still Hope!!! 🙂


Fatigue and Chronic Illness

What is Fatigue and why do I want to talk about it? Simple response, it affects me and most of my “Chronic Babies”! Well okay all of them!!! But everybody gets tired, right, well yes, but we the IBDer’s, the Lupes, the MSer’s, etc, wake up in the morning already exhausted. Why? Well you know when you get the flu or a cold how tired you are, that is because your immune system went into overdrive to fight off whatever has sickened you, you already know this. Because your body’s immune fights, wins then goes back to normal, right? Right. For whatever reason and this is a big unknown, the immune system of a chronically ill person decides it’s owner is the enemy, and you begin fighting yourself, double jeopardy, you are trying to kill you. Your white cells are attacking your red cells, red cells, white cells, white cells killing good bacteria. UGH,,, I’m Tired!!! I have wiped myself out!!!

Joshua E. Robinson


In Your Darkest Moment Always Remember There is Still Hope!!! 🙂

I lie almost everyday

This is very good and pretty much applies to all with a chronic illness.

gut-wrenching truth about crohns


Today tested my character and broke me down. I am tired of lying. I lie so I must be a terrible person right? Maybe.  Let me explain and you can judge me later.

You: How was your weekend?

Me: It was good. I just lied to you. I sugar-coated my weekend because honestly you don’t want to hear the truth. You don’t want to hear that while it was wonderfully beautiful outside I spent most of the time curled up in a ball fighting the pain in the pit of my stomach and nausea that creeps up whenever it feels like it. (I have Crohn’s disease and that sometimes is my typical weekend.) I also sucked that up for a few hours to work my second job to pay my mounds of accumulating medical bills.

See, you didn’t want to hear the truth. I don’t know why people…

View original post 373 more words

Helping Myself and Others

So where have I been, what have I been up to, why have I not been blogging? Well I

have been very busy working on the planning committee for my Take Steps walk as well

as fund raising for my team, Grafton Gutsey.

This is the few months out of each year that I feel I am make a difference by helping

myself and others with IBD. Take Steps is The Crohn’s and Colitis Foundation of America’s

major fund raiser for education, research and hopefully someday a cure for IBD. It is also

a great time to raise awareness, when I was diagnosed in 2008, I was so glad, it had a name,

I could be fixed, wrong. I had never heard of such a thing, Crohn’s disease, I would have

probably ran away from someone like me talking about it because of its nature, it’s has

some pretty gross aspects.

As I said I had never heard of Inflammatory Bowel Disease, however over the last 5-1/2 years

I have learned it is so much more than a pooping illness, it affects your entire body and can cause

major depression. Chronic diarrhea, crippling joint pain/arthritis, blood loss, exhaustion, hair

loss, depression, bone loss, malnutrition, death, I could go on for hours. So anyway that is what I have +

been up to, planning, fund raising, awareness and working for a cure because right now there is no cure.

Joshua E. Robinson

In Your Darkest Moment Always Remember There is Still Hope!!! 🙂

The CCFA ask me for a letter…

Hello All,

My name is Josh Robinson, I have Crohn’s disease. Crohn’s disease is one of two conditions known as inflammatory bowel disease, the other being ulcerative colitis. On December 24, 2008 inflammatory bowel disease change my life, I thought I was getting the flu and many months later, after nearly dying I received my diagnosis. Five plus years into my illness I still have not achieved remission, but I have come close. The fact that this disease is still such an unknown and incredibly difficult is why I am helping with the fight to find a cure for future people.

IBD has symptoms that are unpredictable on an hour to hour basis including diarrhea, frequent nausea, skin problems, eye pain and joint pain. My life and my family have been affected greatly by my illness. Other than work I rarely leave home due to this disease being so painful and unpredictable. Inflammatory bowel disease affects 1.5 million Americans and over 5 million people worldwide, this is far too many folks to live this way.

However, you can help with this cause! The Crohn’s and Colitis Foundation of America (lmccann) to help with this very important mission.

Thank You

Josh Robinson


In Your Darkest Moment Always Remember There is Still Hope!!! 🙂

Homemade Yogurt

How I Make Homemade Yogurt

Josh Robinson 02/14/2014

1.) Bring 2quarts of milk, (whole, raw, 2%, 1%, goat, whatever just so it is animal milk) in a large sauce pan to the temperature of 185 degrees, being careful not to scorch.

2.) Remove from heat and let cool to approximately 110 degrees.

3.) I use an electric 2 quart yogurt maker. Although you can use a large plastic bowl placed in the oven with the light on.

4.) Put 1 cup of non flavored commercial yogurt, I use Greek, in the yogurt maker or bowel, mix 2 cups of cooled milk in with the yogurt and mix.

5.) Mix in the remaining milk with the mixture and mix well.

6.) Plug in the make or place the covered bowl in the oven with the light on.

7.) After 24 hours place internal bowl of yogurt maker or your bowl in the refrigerator wait 6 hours and enjoy.

SCD Yogurt and very IBD / Autism / Celiac Safe


my life is a work-in-progress….i’m perfectly content with that~

Take Steps 2014 video

Hi All,

I thought all of our committee members might enjoy this video. It’s our 2014 Take Steps promotion.

You are all welcome to use it and share in your emails, on your facebook posts, twitter tweets etc.

Enjoy! Have a wonderful weekend~

Lori J. McCann
Walk Manager

Crohn’s & Colitis Foundation of America
Western Pennsylvania/West Virginia Chapter
300 Penn Center Boulevard, Suite 401Pittsburgh, PA 15235
Tel: (412) 823-8272Cell: (412) 417-8599Fax: (412) 823-8276

Our Mission: To cure Crohn’s disease and ulcerative colitis, and to improve the quality of life of children and adults affected by these diseases

~my life is a work-in-progress….i’m perfectly content with that~