11:00pm or so, three years ago.

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10AM or so three years ago yesterday



Around 10:00am or so I am extreme pain with uncontrollable nausea, vomiting and pain, I have been through much but never anything like this, it owned me. By lunch time, about 11:00am I had regained myself enough to do my job. Sitting at the sales counter doing my sales job and watching Saffle eat, I was sure I had either passed kidney stones or the were on the way to passing. Hmmm… I ate my small burger patty and cup of mashed potatoes, and continued working uneventfully (other than nausea) the rest of the day. At 4:00 we packed the store up and it was time to go home. I noticed walking across the parking lot I was more than slightly bent over in pretty significant pain and exhausted. Homeward bound I go with two stops to throw up.

Once home and in the house I told my family I was in some pain and was going to soak in a bath tub full of hot water. I went upstairs and got in the tub for a nice soak. I noticed while lying there I was in severe pain, the pain was not letting up and I was pretty light headed. Usually a good soak helps with my belly and joint pain but not this time and it was actually getting worse. I got myself out and dressed to go to Anthony’s basketball game in Philippi. Eva notice I was leaning over and ask what was wrong, I explained my day to which she told me not to go to the game, and after a brief banter back and forth I agreed to stay home.


So I’m home alone and I decide for whatever reason to lay in the recliner and watch the evening news. This is pretty significant because I never watch TV in the living room and I had already taken my phone upstairs to the man cave to charge. As the news was on I became very sleepy, rolled over and closed my eyes. I rolled back over noticing the news was off and I had to pee really badly. As I stood up it felt as if someone kicked me in the groin and punched me in the gut at the same time. The pain was so intense that I fell to the floor, very frightened I got myself up and then crawled up the steps to get my phone. I called my Mom, explained what was happening and ask her to send Tiffany or Stevie to take me to the ER. I gathered myself and went down to the street to wait.

My son Stevie picked me up and we made the short trip to the ER at Grafton City Hospital.

From this point on this are fuzzy!!!

Now me being from Grafton my whole life, I know everyone but the only person I remember for the next several hours is Beth Kochka, this is because of the pain and pain meds. I go in the ER and they put me on a gurney, pretty soon my boy Steve and daughter Tiffany appear, Stevie had been out checking me in. The Doc orders blood work, IV’s, X-Rays and then a CT scan. First thing is my white blood cell count is through the roof, I never did hear about my X-rays or I don’t think I did. The CT scan showed three small, they said “micro perforations” in my colon and they were leaking into my abdomen. Ok now we have emergency, bowel perfs can and frequently do cause people to go septic and die rather quickly, I am scared. By the time we get to this point, about roughly, guessing, hour and a half in the ER I’ve had three shots of Demerol so I have major brain fog!!! At some point my wife, Eva appears, she had taken Anthony to Philippi to play basketball, I love watching my little play ball so even in my current situation I felt cheated.

Ok so myself, care team and family started working on a plan. There are only four people I trust completely with my life, David Bender, Carla Scharf, David Ciarolla and Charles Frank. This situation was up to Doc Ciarolla and Frank. So it was time for a wonderful ride with Taylor County Emergency Squad. Mark tended to me in the ambulance, my pain was utterly unbearable. Thank Gods for the docs and dispatchers the he was able to give me two shots of morphine…

11:00PM or so

Joshua E. Robinson


In Your Darkest Moment Always Remember There is Still Hope!!! 🙂

That awful C word… Crohns.

Very good in explaining the disease, I just hope some “Normal Folks” read it.

Diary of a crohns warrior and life junkie!

“Today I will fight again. This disease will not own me or define me.”
These are the words I like to begin each day with, stating my intent out loud. Somehow it seems if I actually hear it, it’s easier to live it and believe it.
I have Crohn’s disease, for which there is no cure – a disease that requires a daily personal battle with things most of us prefer not to discuss with others. And for those who must deal with it, one thing is certain. It’s horrible, it’s overwhelming, and it’s humiliating.
The humiliation factor is a major reason so many suffer in silence -the evidence of the disease and the treatments are things you just don’t tell others about.
So you find yourself facing the challenges alone – the pain that literally doubles you over without warning: nausea, life-threatening bowel obstructions, incontinence, dehydration, intravenous feeding…

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