One of the hardest things about having Crohn’s disease is what I know. These things I know are things that should never be on a person’s mind, they carry a heavy weight. For instance I know that my illness is chronic, meaning that there is no cure, meaning that I will have Crohn’s for the rest of my life. There is no magic button, switch, pill or procedure that will take or stop this illness, it’s forever and ever. I do not like this knowledge. It is a frightening experience taking my medications because I know the side effects, one of which it says right on the package “rarely, sudden death can occur”.  I don’t like knowing this either. I don’t like knowing that I am at an increased chance of getting several different types of cancer either because of my Crohn’s or the medications I take to treat it. This disease is just plain downright scary, I know this…


However with this information, knowledge or whatever you can describe it as I am empowered. Because of what I know I can talk about inflammatory bowel disease to raise awareness and money for research for a cure. Because of what I know I can help the newly diagnosed understand what has happened to them, what they are going through and what to expect. Because I am sick I can be there for other folks that are ill when they are in need. I know I am a member of a huge community of the chronically ill, and I know they are the most helpful caring people in the world. However the thing I cannot help with or explain is why! I have no knowledge of why, not for myself or anyone else. Why?


One response to “

  1. I’m sure these are thoughts and feelings that all with crohn’s & colitis face. I don’t think I will ever accept the fact that I will forever be ill, forever seems like such a long time! You are doing wonderful things my raising awareness. Our job is to raise the awareness and their job will be to do something about it! Not going to stay quiet any longer, the trouble is that no one likes to talk about it. Time to stand up and be counted! Keep up the great work x
    With love,

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